hello everyone

hope everone is ok and I am sorry for those in pain, i am myself waiting to go to Consultan because he took me off enbral and left me on pain killers and the pain is worse then i have ever had but he did say this may happen but i am at the hospital next wednesday so lets hope i get sort with somthing to try. but my most important Question to you all has anyone ever had pain and swelling in thier Jaw. I keep getting it and i can not chew food too well. i know it is not teeth as i have found a dentist that i can go to and he says there is nothing wrong with my teeth. has anyone got any advice on this please.

Bless you all

Audrey

Hi Audrey

I had a problem with my left jaw, which lasted for quite a few months. It would really ache when I went to bed but not so bad in the day, as the RA was not under control I just tied it in with everything else but bit surprised it only happened one side. I did mention it to the consultant on one visit but so many other things were going on he didn t really take much notice, to cut a long story short eventually it showed up that I had an ear infection, I took buckets load of ear drops in desperation it would go away and it did in the end, this was about three months ago.

If they can t determine the problem perhaps your consultant we give you an MRI scan as pain in your jaw can be really nasty especially with trying to eat. I m sure others will give you some thoughts on this too.

Julia x

Hi Audrey

In the past I have posted on here about the awful jaw pain. In my case it usually lasts for around three days when I only eat soup and yoghurts. Please see link about this, note that only 17% of people with RA get it in the jaw http://www.arthritis-tre....com/jaw-arthritis.html

Val

HI Audrey, everyone

I TOTALLY get you...

My Jaw Pain was present at the start of diagnosis (which was last October)..
The pain is unlike toothache, and more like being punched in the side of the face..hurts to yawn or laugh and eating something like a baguette sandwich..out of the question!!!!..

some days good..most days bad...

My Rheum tried me on a gel called ketoprophen which is a gel that you rub on..it does work, remember to wash you hands after as it works through the skin...however in my case it wasnt enough..


It got so bad that I asked if a steroid injection was possible in the Jaw...Im sure a lot of members understand that when your in a great deal of pain, you'll do almost anything to make it go away....E.g have someone shove a needle in your face....

And thats exactly what happened to me yesterday.. and I promise...it didnt hurt...Believe me when I say I was scared to death..but it really was ok..luckily he was very skilled and has done it many time before...I know they gave me something to numb area..Possibly Linocaine???...but I got full movement back and no pain whatsoever..

Im being referred to Orthodontics, and will prob have to wear a gum shield over night to help keep my chops have full motion, but Id rather that than the constant feeling of waking up feeling that ive been to 'Fight Club' the night before..

Obviously talk it over with your Consultant..see what topical meds are suitable for you...ask to be referred to Orthodondics and get their opinion too...
Jaws are joints...so effected by RA...One of the hardest things I learned about this Disease is that whilst we all have a certain level of simularities..it can effect us all in different ways...

Hope your O.K? and by the way, this is my first post
MoBxx

Hi MoB

Welcome to the forum. A friend has severe RA in her jaw and they an now replace the jaw (ouch)! Apparently this op is common in the USA but not here, for some reason, although it is getting much more credence latelty.

Keep posting

Love Jeanxx

I had terrible pain in my jaw for a long time before i was on methetrexate . The pain is horrendous so i know what you are going through. Hope you get it sorted soon
Audrey. Kathleen Mc.

Hi Audrey - Oooooh sounds so painful. It is the one place I do not suffer (fingers crossed) and I cannot imagine anything worse. When it is in your head you cannot get away from it.

Hi MOB - Welcome to the forum and again sorry that you suffer from pain in the jaw but glad you managed to get yours sorted out.

My Daughter has just had to wear a brace for two years and she thought that was bad - wait until I tell her how lightly she got off.

Jackie
xx

Hi Audrey,

Only had jaw pain a couple of times, but for me its the second worst pain, shoulder being the first.

Hope it has now settled down.

Anne x

Hi Audrey

I may be jumping the gun here. but I really think you should ring the NRAS helpline for some advice. I can't believe what you have been told. OK - I'm no medic but it seems to me gobsmackingly wrong to leave you with no meds to wait until your joints need replacing!!!! There are so many drugs out there, including Rituximab, Cimzia, Toccilizumab and a whole raft of others for you to try. Please, please contact NRAS now and ask for some advice.

Much love Jeanxxxx